So..

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I'm new to this site and I guess I just want to vent a bit. I don't know anyone else whose going through anything like my situation, and I don't want make my family feel bad about something they have no effect over. At the beginning of my senior year of high school four years ago, I fell into a coma due to TTP, a blood disease of unknown origins that usually "isn't discovered until the autopsy". However, God blessed me to recover swiftly without rehabilitation. I even graduated with my class on time and then entered college the following fall. But there are times when I feel... off. I slept more than ten hours a day when I came home from the hospital, and I still require more sleep than the average person, so I guess my brain is still healing itself, even four years later. Looking back over the years since the coma, I realize more and more that they are almost an exact replica of how I remember my life to have been before, making similar mistakes and decisions, and that I was acting like a kid, almost as if I were going through childhood. When I quote-unquote reached maturity, I realized how serious what happened really was and how I needed to take care of myself so I stopped staying up all night like a 16 year old. I experienced disorientation a lot in the first year, and had to withdraw from school because I just couldn't keep up, mentally or physically. The only people who know I'm not in school are my mom, grandmother and a few friends because it's so embarrassing to have had everyone so proud of me and to have less than a year's credits and the people I went to school with who are in college are about to graduate next year. I know my quick recovery was a miracle, because most people don't survive TTP, but it feels like a burden at times because people except me to have bounced back to become a normal 22 year-old, and as much as I want it to be, that's just not the case. My friend and her family think my mother is overbearing, but she actually protects me because I've been always been naive so she shelters me. My memory before the coma wasn't the best because I didn't sleep enough, but afterwards, I could barely remember details I was told an hour before, and can't remember more than a few months into the past. My memory from before the coma is splotchy. My grandmother thinks I'm brain damaged or something, but I don't believe that's the case, I think I need an occupational therapist because just like I had to relearn how to hold a pen and walk on my own, if it spills through the memory part of my brain, I need to learn it again, in a way that I can retain. It's always been somewhat hard for me to make friends, espically so now because I feel socially awkward and inept. I've always been a loner by design, and didn't have many friends, but the sickness was too much for my best friend of eleven years, so we drifted apart two years after it happened. So coming to a close, I guess what I want to know is it normal for people who've been in comas to have memory problems, or is that simply a part of not being on a consistent sleeping schedule? Do you feel like you were a different person before? Do you feel like you underwent childhood again during your recovery? How do you deal with relationships, I guess making the people around you comfortable or just letting them know what's going on in your head? I'm to the point in my recovery where I'm realizing how much relationships actually enrich lives, and I want to start new, healthy ones and salvage what's left of the old ones. That's enough for now. Thanks in advance.

 
By JenRose on Sat, 12-31-11, 04:31

~ You are an amazing person, who is truly blessed. You write beautifully and your words are expressed greatly. I don't have experience about being in a coma or anything like that, although, I believe that your right on a lack of sleep causing you memory problems and I also think stress does to, because sometimes I will be doing something and totally get off track and end up blundering around aimlessly. I would just say let people around you know what your thinking, and let them know your story. From there people should accept you for who you are and if they don't , then that's OK, move on because they are the ones losing, they are the ones missing out on the wonderful person you are . And that is not just you, that's anyone, i have meet people who for one reason or another want to judge me and don't want to be my friend. Its sad but this world is filled with many judgmental people. But don't let that stop you from trying and meeting other wonderful people. I have found that people who surround them selves with god are great people to become friends with, because they have compassion in their hearts. I wish you the best, Take care and God Bless.

~JenRose~

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By kotniknm11 on Sat, 02-18-12, 10:21

Come August 24, it will be one year since I suffered my brian anerusym. I spent to weeks in an induced coma. I feel like I have a lot of lost memories and remembering trival things is really hard. I don't feel like my old self anymore. If you lose a friend or friends because of what happened, JenRose is right. They're the ones missing out. While I spent a month in a half in the hospital, I saw who my real friends were. One close friend of mine used her entire vacation allowence to spend a lof of time with me there always bringing things like puzzles, pictures, and books. Bad friends aren't going to help you recover. I had an occupational therapist and they did a lot to help me. If you're sleeping schedule gets hammered out, try one. Good luck to you. Take care.

Natalie

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