Its VERY frustrating having a TBI

Posted in Group: 

Hi,

Im pretty new here but not to brain injury. I got my first injury when i was about 17 yrs old. There are many things i deal with that makes life for myself hard. Feels like i am always looking thru a film and yes, i did get checked to see if i had eye problems/cateracts, whatever.. Can not explain accept to say that everything for me is overwhelming. And after each one i had have, it gets worse and harder. I say these things for information and sharing with you all.. i dont need or want anyones pity, just want ppl to ''understand'' me. My temper and other things have gotten intensified, even the headaches. worse as the years go by. this is all i am going to share for now.... dont want to put it all out here .... need to make sure its a trusting place for me. :) hugsss to all........ oh to to let you know, I am 60 this year...
any questions/support/hugs or smiles are always welcomed.. :) Lets be real and honest.. thanks.... only way i can roll.....

 
By CK on Thu, 02-16-12, 09:43

I came across this article and thought you might find it helpful:

Yoga for Brain Injury
By Laura Bruno

For people recovering from traumatic brain injury (TBI), concussion or head trauma, yoga offers gentle exercise with therapeutic benefits. Many survivors find themselves unable to pursue former ways of staying in shape. Balance difficulties, loss of motor control, vertigo, and neck injuries limit physical activity, further restricting an already curtailed lifestyle. Fortunately, a yoga practice can adapt itself to any illness or injury, lending itself particularly well to TBI recovery.

Where to start? With yoga's recent popularity in the West, students can now choose anything from hot yoga to Kundalini to Ashtanga. People with neck or back injuries in addition to head trauma probably want to begin with a teacher trained in Iyengar yoga, which uses props to support proper alignment without strain. Kripalu trained teachers also tend to offer calmer, restorative classes. Any yoga class that emphasizes flow (not too fast, though) will help retrain sequential processing-an advantage for people who suffered damage to their left-brain or rational side. A vinyasa sequence links breath and movement, emphasizing step-by-step progression in a set order. Learning and remembering such movements through repetition becomes a form of cognitive therapy.

Before beginning a yoga practice, survivors should talk with their treatment providers, as well as their intended yoga instructor. Most teachers ask about injuries in the beginning of class, but few people understand the intricacies of TBI on their own. Explain any unusual sensitivities or restrictions you experience and ask the instructor for recommendations within his or her own class, or for suggestions on where to find more compatible classes. Yoga is supposed to support and nurture growth, not exhaust the body and nervous system.

For this reason, survivors might initially want to stay away from Kundalini Yoga or Bikram Yoga, both of which offer intense workouts. Kundalini Yoga aims to awaken dormant energy potential, which sounds like a good thing for TBI survivors. Indeed, it can help tremendously--once neurons have stopped misfiring and "short-circuiting." Most survivors inaccurately gage their stamina, though, easily over-stimulating themselves. Kundalini Yoga works powerfully on subtle levels, making energy levels more difficult to monitor. Sometimes the rapidly awakened kundalini proves too much for a sensitive TBI survivor. Bikram Yoga takes place in a very hot room, moving rapidly through poses that encourage the sweating of toxins. As with Kundalini, adherents of Bikram rave about its benefits. For a hypersensitive survivor, though, the excessive heat, body odor, and physicality of Bikram make it a less safe option. In the beginning, look instead for class titles like: "Restorative," "Beginner," "Iyengar," "Kripalu" and "Gentle."

Yoga Journal offers many DVD's, in case survivors prefer to learn in the comfort of their homes. Start with short sessions to build up mental and physical stamina. Twenty minute DVD's allow survivors a sense of accomplishment, without the potential fatigue caused by hour or hour and a half long in-person classes. Downward Dog Productions with Sarah Bates also offers accessible yoga DVD workouts designed especially for people with disabilities. At-home yoga workouts take most of the expense out of learning yoga, too, since survivors can invest in one or two DVD's to practice every day, rather than paying for class each time. On the other hand, a good yoga teacher can personalize routines to support survivors' own unique health challenges.

Besides sculpting lean, strong muscles and naturally realigning the spine, yoga offers TBI survivors a chance to reconnect with their bodies in a positive way. Robin Cohn, a TBI survivor and Vice President of the New York State Brain Injury Association, recognized the transformative effects of yoga in her own recovery: "I began with a beginner's gentle yoga class, where I slowly started to get atrophied muscles moving once again. The more I went, the better I began to feel." Inspired, she began co-teaching yoga classes designed especially for other survivors. "These students are so thrilled to have the opportunity to be practicing yoga and reaping the wonderful benefits of asana and pranayam (breathing). ... The happiness, tranquility and peace that yoga brings to them is so rewarding! Their smiles just say so much about how happy they are to be practicing."

Yoga brings awareness from 5000+ years of connecting human body, mind and spirit. It began as a means of calming the endocrine system and relaxing the body so that practitioners could sit longer in meditation. These calming, strengthening and relaxing effects make it an ideal practice for TBI survivors whose systems run on constant overload. Slowing down and bringing oneself to center can help anyone deal with stress. For TBI survivors, though, yoga offers a glimpse of not just "normal" functioning; yoga also brings the chance for optimal health and well-being. Many practitioners experience peace and self-acceptance for the first time in their lives, including pre-injury. Yoga becomes part of a greater awakening (facilitated by TBI)-helping survivors to find and appreciate the hidden blessings of their journey.

So glad you found the site and I hope you continue to find support and encouragement!

Blessings-
CK

Sometimes I believe in as many as six impossible things before breakfast-Alice in Wonderland

Support Points: 37295
Badges 
Black Belt in SupportBrown Belt in SupportPurple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By Snowy Girl on Thu, 02-16-12, 12:03

Wow.. is all i can say... thanks CK,

i am going to re read this until i understand it all, but am going to check into yoga.... never thought... :) On the news the other day it said yoga is not good to do.. lol... oh course, walking across the street isnt good either.. ha ha ha.. sorry, small joke.. :)

I am going to read this post you did here over and over til i understand it all then go from there... but you know, i never would of even thought of using that. why? i dont know.. :)

thanks so much... and you have a great day..... i see your post a few places and you do have ''some smarts'' as they say.. ;) ... you are kind when you talk with ppl , not condisending as some .. keep up the good work in supporting others and take some time for yourself also, as you probably already do.... hugsssss ..may God bless you abundantly..... ;)
Snowy

Support Points: 260
Badges 
Aqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By Snowy Girl on Thu, 02-16-12, 19:38

heyyyyy, you know because of your post you got my brain into moving.. again. :) today i watched some ppl do a form of ti chai(?) and they said it is a much more gentler excercise... but anyways, i was told to go next class, next wednesday, and i can join in to see if i can handle it.. so i will take my walker and do it while using my walker.... and just because you posted what u did, made me think.... i love these post places...... sometimes you just need a sounding board to know what to do.... its funny, i can help others so well, but to help myself? i cant fight my way outta a paper bag... LOL

so thanks again..... have a great night.... tc
snowy

Support Points: 260
Badges 
Aqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By CK on Thu, 02-16-12, 12:37

Thanks Snowy! I think yoga is a great form of mind/body exercise, it helps so much in so many different situations, but I definately find it extremely relaxing and I feel so in control after I finish my practice. I had one yoga instructor that always started class with saying that we were supposed to be patient with our body, that today's practice would be different from our last practice and that was fine. So be patient, if it helps just a smidge at first, thank your body for even that tiny improvement. I know it might sound weird to thank your body, but we curse it when it is doing poorly, so why not thank it for performing well?

I really appreciate the sweet praise from you and look forward to hearing more from you!

-CK

Sometimes I believe in as many as six impossible things before breakfast-Alice in Wonderland

Support Points: 37295
Badges 
Black Belt in SupportBrown Belt in SupportPurple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By Snowy Girl on Thu, 02-16-12, 22:34

you're right .. we don't tend to treat our body all that good also.. i least i sure didn't while i was younger....
How long after you started doing yoga did you notice a difference on how to talk to yourself and feeling so in control?? no, it dont sound weird to thank your body... its a new way of talking for me and if it is to benefit our body , why not do it? :) sounds good to me... but interessssting... ty
Im all for learning anything especially if it helps

Support Points: 260
Badges 
Aqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By CK on Fri, 02-17-12, 12:32

I struggle ever yoga class to turn my brain off and just be in the moment, it is a constant tug of war between focusing on my body and the million and one things that pop up in my head on a second, by second basis. i feel in control and powerful because I accomplished a form of mind and body exercise I feel is challenging and it is the one activity where it is quiet, where you have to focus on the moves, on the breathe, on what your body is capable of doing that day, etc.. When you get to the end and you reach the relaxation stage-at the end of practice you lay down on your mat and the instructor guides you through a relaxation pose-getting there to me means I worked hard, I might have stumbled and fallen a few times, but I made it.

It's a good analogy for life in a way.

Blessings-
CK

Sometimes I believe in as many as six impossible things before breakfast-Alice in Wonderland

Support Points: 37295
Badges 
Black Belt in SupportBrown Belt in SupportPurple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline

Follow supportgroups.com on:

The information provided on SupportGroups.com is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her health professional. This information and interaction provided on this site is solely for informational and educational purposes and does not constitute the practice of medicine. Information on this site does not replace the advice of your physician or other health care provider. Neither the owners or employees of SupportGroups.com nor the author(s) of site content take responsibility for any possible consequences from any treatment, procedure, exercise, dietary modification, application of medication or any other action which results from reading this site. Always speak with your primary health care provider before engaging in any form of self treatment. Please see our Legal Statement for further information.

Join SupportGroups.com

Find a Support Group That's Right for You

What Other People Are Saying

 

Top Contributors: 1 day

UserSupport Points
kc55320
Positive Vibes300
drillteamlover200
CK190
April170
MaluLani140
Avee120
JessicaC120
Suzee120
mstryder120

Who's online

There are currently 7 users and 695 guests online.

supported