I want off this rollercoaster.

By Larry G Smith on Wed, 02-08-12, 12:04

Posted in Group:

Brain Injury

Hello,
It took nearly two years to finally get a correct diagnosis for my brain injury. My complaints of lethargy, lack of motivation, depression, chronic muscle pain, waking up from a coma every morning, loss of sexual desire and overall physical weakness did not trigger my Physiatrist's curiosity to investigate a concussion. In essence they kept asking the guy that does not remember the accident if he hit his head. If you looked at my helmet I did not hit my head as there were only a few tick marks on the left side.
I finally now have two doctors that I have been working with since May 16th 2010 that know why my symptoms do not go away. I am being treated for Post Concussion Syndrome, Myofascial pain syndrome, somatic dysfunction, severe depression and low testosterone. Inspite of the drugs (which make me feel considerably better) I just can not seem to get past all of this and resume my normal life. I am not the same man my bride married 31 years ago.
It will be three years this July and I fear I may never be the same. Anybody out there that has similar symptoms and GOT better eventually, I would like to hear from. It is very frustrating just with the pain alone not to mention supporting my family as in the past.

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By redloui on Thu, 02-09-12, 07:51

my partner went through the same things, and we're still on the path to recovery, unfortunately something else when wrong, after his concussion, and he did something to break the law. that has set us back even more. he's being treated, for all those things you described, and he's probably about 60% better than he was back in 2010, but its going to be a long haul, as its not his first concussion, and probably his 10th at least over the years, and we've struggled HUGE to get doctors to believe in us, and his history, and his symptoms, and not diagnose him a psychiatric. its a never ending story, and no he's not always able to be the same man i was once with, but at times he is, and i still love & support him. i don't expect him to ever return to be the same man he was, i'm just hoping for a new normal, and a resolution to all the troubles we've experienced. good luck, and keep working, check the blog broken brain brilliant mind, he's blogging daily his struggles and sucesses with PCS.

live, love, laugh, Hope!

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